Dac has had thousands of seizures
in her life.
They started as Infantile spasms,
morphed into tonic clonics, she
has endured atonic drop attacks and now has
both absence and grandmals.
It’s hard when your world revolves around
seizure medications, helmets, safe beds, monitors,
service dogs and rescue meds.
Dac’s seizures are now pretty well controlled.
1 a month, 2 at best.
Is that great control? Some ask.
It is for an adult that use to have more than a
hundred a day and suffered permanent brain damage
because of them.
A hundred a day? You ask doubtfully.
Yes. unfortunately dac has Lennox Gastaut
Epilepsy (intractable epilepsy) along with Tuberous Sclerosis
and Autism. She can go into
a status seizure at any time. Her longest seizure
was when she was 13 and it lasted three hours.
I would have never believed anyone could survive
a seizure for that long but she did.
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